Parent or Carer Co-Chair Expressions of Interest
East of England Neurodevelopmental Disorders Network
The East of England Neurodevelopmental Disorders Network is a new and exciting opportunity to bring together all parent/carers, clinicians and commissioners who support children and young people with a learning disability or autism across the East of England.
Covering Norfolk, Suffolk, Bedfordshire, Luton, Milton Keynes, Cambridge and Peterborough, The Neurodevelopmental Disorders Network aims to:
· Share examples of good, effective care and treatment
· Help to improve access to community services for children, young people and families seeking diagnosis and treatment of a neurodevelopmental disorder
· Support improvement in the quality of community services offered and provided
· Focus on understanding what is important for children, young people and families.
It will be led by the East of England Learning Disabilities and Autism Programme, who are responsible for the implementation and oversight of NHS Long Term Plan relating to: Improving services and support for children, young people and adults with a learning disability and/or autism who display behaviour that challenges, including those with a mental health condition.
What is the role of the parent or carer co-chair?
The Neurodevelopmental Disorders Network is looking for a parent or carer co-chair who will bring experience of caring for a child or young person with a neurodevelopmental disorder. They will understand the need to develop and transform community services for the benefit of all.
The role will include networking with other parents or carers and bringing their own views to the meetings, taking into consideration the limits of confidentiality. They will work with the Neurodevelopmental pathway meeting co-chairs to develop the agenda, lead the quarterly pathway meetings and be involved with any task and finish groups/workshops that may be developed through the pathway meeting. This role attracts a daily rate of £150 for 6 hours or £75 for half a day (3-4 hours). Travel expenses will be paid in line with NHSE expenses guidance.
How do I apply?
Expressions of interests should be submitted to Hannah Mann, Children and Young Peoples Lead, Learning Disability and Autism programme, East of England hannah.mann4@nhs.net by Monday 12th October 2020.
Your expression of interest should be no more than 400 words and answer the following questions:
1. Why do you think you are suitable for this post?
2. What will you bring to the role?
We will hold virtual discussions with prospective co-chairs on Tuesday 20th October 2020. Discussions will be held with: Hannah Mann, Children and Young Peoples lead, Learning Disabilities and Autism programme, East of England, David Wright, Learning Disability and Autism CAMHS clinical lead and Matt Clarke, Learning Disability and Families Advisor.
For an informal discussion about the role please contact Hannah Mann.