skip to content

skip to main menu

skip to section menu

accessibility help and information

01480 499043

 

pinpoint Blog

Tourette Syndrome Awareness Month: May 15 - June 15

Who better than our 2017 conference guest, Georgia McCormick, to write something to mark TSAM?

Georgia, a Cambridgeshire mum to two boys with additional needs, appears with her husband Scott and eldest son Isaac, on Channel 4's hit show Gogglebox - pictured below.

Here's Georgia's post ... just to give you the heads-up, there's a few adult words in here for emphasis!

Mental Health Awareness Week 2017

Logo MH awareness week 2017

Today, May 8, is the start of Mental Health Awareness Week (MHAW) 2017.

According to UK charity The Mental Health Foundation, too few of us are thriving with good mental health. It has resources to help parents, young people and families look after their mental health and build resilience to cope with life's demands.

These include:

Hypermobility

If you couldn’t make our June Network Meeting at Huntingdon this month, we wanted to share information from our mini-workshop on hypermobility, run by Cambridgeshire Community Health Services. Here’s what we learned from Stevie Parker, who leads the children’s physiotherapy team for Hunts.

Achieving Continence with children with sEND

Community paediatrician Dr Jackie Taylor was among the team of professionals at our June network meetings.  At our Papworth session she ran a mini workshop on continence.

Timescales

Typically developing children become “toilet aware” between 3-4 years old. For children with delayed development, that milestone will be later.  Only a small group of children will never become continent – usually those with gastro problems, spina bifida and learning disabilities or cognitive issues who have a development age of less than two.

Disability benefits for children and young people

Applying for benefits can be confusing especially if your children are transitioning from one to another.  Some forms appear straightforward but filling them out correctly and providing the right evidence of need can be difficult to get right.

      

Communication: top tips for parent carers

Our network meetings last month were all about communication.  If you missed them, here are some top tips from our Partnership & Participation Co-ordinator Eve Redgrave, who ran mini-workshops for parents.

Good communication is good for everyone.  And if you're a parent of a child with additional needs, you are likely to be attending extra meetings with professionals   -  which can be extremely stressful.

1. Be prepared

Make a checklist of what you want/need for your family